William Gaillard Epilepsy and Neurophysiology Children's National Medical Center website |
Madison Berl Neuropsychology Children's National Medical Center website |
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Nan Bernstein Ratner Hearing and Speech Sciences University of Maryland nratner@umd.edu |
Amy Strekas astrekas@gmail.com |
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Mara Steinberg Lowe Communicative Sciences and Disorders New York University marasteinberglowe@gmail.com website |
Participants: | 25 epilepsy / 25 controls |
Type of Study: | clinical |
Location: | Washington, D.C. |
Media type: | audio |
DOI: | doi:10.21415/T51P4S |
Berl, M. M., Balsamo, L. M., Xu, B., Moore, E. N., Weinstein, S. L., Conry, J. A., ... & Ritter, F. J. (2005). Seizure focus affects regional language networks assessed by fMRI. Neurology, 65(10), 1604-1611.
Gaillard, W. D., Berl, M., Moore, E., Ritzl, E., Rosenberger, R., Weinstein, S., Conry, J., Pearl, P., Ritter, F., Sato, S., Vezina, L., Vaidya, C., Wiggs, E., Fratalli, C., Risse, G., Ratner, N. B., Gioia, G., & Theodore, W. (2007). Atypical language in lesional and non-lesional complex partial epilepsy. Neurology, 69(18), pp. 1761-71.
Mbwana, J., Berl, M. M., Ritzl, E. K., Rosenberger, L., Mayo, J., Weinstein, S., ... & Sato, S. (2009). Limitations to plasticity of language network reorganization in localization related epilepsy. Brain, 132(2), 347-356.
In addition, researchers this cohort should reference one of the following two papers:
Strekas, A., Bernstein Ratner, N., Berl, M. & Gaillard, W. D. (2013). Narrative abilities of children with epilepsy. International Journal of Language and Communication Disorders , 48(2), 207-219.
Steinberg, M., Bernstein Ratner, N., Berl, M. & Gaillard, W. (2013). Fluency patterns in narratives from children with localization-related epilepsy. Journal of Fluency Disorders, 38(2) 193-205.
In accordance with TalkBank rules, any use of data from this corpus must be accompanied by at least one of the above references.
Plasticity of Language in Epilepsy Research (POLER) was a project conducted by William Gaillard, Madison Berl (both of Children’s National Medical Center, DC) and Nan Bernstein Ratner (UMD). The POLER children in this directory are a subset of a larger number of children followed by Gaillard et al. (2007), Berl et al. (2005), and Mbwana et al. (2009). They are 25 children with epilepsy (CWE) matched by age and gender to unaffected peers. Their ages varied from 7 to 11. The 25 CWE were further subdivided, as noted in individual files, by time since onset of seizure disorder. Recent onset children (CWE-R) were defined as those whose seizures had begun less than a year before entry into the study; those defined as chronic (CWE-C) had onsets more than 3 years previous to enrollment in the study. This distinction caused CWE-C and peers to be slightly older, as a group, than CWE-R and their matched peers. A chart is provided that illustrates how children were matched pair-wise.
Data are available for each child for a number of psychoeducational and standardized language assessments.
Transcripts are of the narrative elicitation task, which asked each child to generate a story to the book “Frog, where are you?” after children had been shown each set of plates in the story.
Transcripts were originally annotated for fluency for a project published by Steinberg et al. (2014), but were done in a format not compatible with the more recently developed fluency codes in CLAN.